Parkinson’s in Hospital: Why Medication Timing Matters So Much

Imagine being admitted to hospital for something completely unrelated to Parkinson’s.

Perhaps you’ve had a fall.

Perhaps you need an operation.

Or perhaps you’ve developed an infection that requires treatment.

You’re given a bed, the nursing staff begin their assessments, and someone asks which medications you normally take.

You explain that you have Parkinson’s and provide your medication details.

Everything seems straightforward.

Then the time arrives for your next Parkinson’s dose.

Nothing happens.

You ask about it.

You’re told the medication round is running late, or that your medicine hasn’t yet arrived from the hospital pharmacy.

Perhaps somebody explains that the ward normally gives medications at set times.

For many medicines, a modest variation in timing may be manageable.

But for some Parkinson’s medications, particularly levodopa, the exact timing can make an enormous difference.

And what appears to be a routine hospital delay can become a significant problem for the patient.

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When the Carer Needs Care: Planning for the Unexpected With Parkinson’s

Imagine a couple who have been married for 40 years.

One partner has Parkinson’s.

The other helps with the things that have gradually become more difficult.

Perhaps they organise medication, prepare meals, drive to appointments or help with getting dressed.

They know the daily routine.

They know which medication needs to be taken and when.

They know which days are more difficult, what helps when symptoms fluctuate and which little adjustments make life easier.

They’ve been doing it for years.

Then one morning, the carer wakes up feeling unwell.

Not just a little tired.

Properly ill.

Perhaps they have flu.

Perhaps they’ve injured their back.

Or perhaps they need to go into hospital unexpectedly.

Suddenly, the person who normally provides the support is the one who needs looking after.

And a question nobody has really discussed becomes rather urgent.

Who looks after the person with Parkinson’s when their usual carer cannot?

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When the World Loses Its Smell: An Overlooked Side of Parkinson’s

Imagine walking past a bakery.

Fresh bread is coming out of the oven.

People around you can smell it before they even reach the door.

But you can’t.

Or perhaps somebody makes your favourite coffee.

You recognise the taste. You enjoy the warmth. You know exactly what you’re drinking.

But that familiar aroma is missing.

Maybe you’ve noticed it gradually.

Or perhaps you haven’t noticed it at all.

For some people living with Parkinson’s, this is an everyday reality.

Changes to the sense of smell are among the lesser-known non-motor symptoms of Parkinson’s, and they can begin long before the condition is diagnosed.
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The Meal Isn’t the Problem: Parkinson’s and the Pressure of Eating in Public

Going out for a meal is supposed to be enjoyable.

Good food. Good company. Somewhere different to spend an hour or two.

For many people, it’s one of life’s ordinary pleasures.

But for someone living with Parkinson’s, eating in a restaurant or café can sometimes involve challenges that other diners barely notice.

Not necessarily because they can’t eat.

Not because they don’t enjoy the food.

And certainly not because they don’t want to spend time with friends or family.

Sometimes the difficulty is everything surrounding the meal.

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When Everything Gets a Little Smaller: Parkinson’s and the Movements We Don’t Notice

Watch two people having an animated conversation.

They don’t only talk with their voices.

Hands move.

Arms gesture.

Shoulders shift.

Faces react.

Someone leans forward when they’re interested.

They turn towards the person speaking.

They nod.

They point.

They shrug.

Most of this happens without anybody consciously deciding to do it.

We simply move.

But Parkinson’s can change something quite subtle about movement.

It doesn’t necessarily stop a movement completely.

Sometimes it makes the movement smaller.

Read more “When Everything Gets a Little Smaller: Parkinson’s and the Movements We Don’t Notice”